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Amy Mantravadi's avatar

Thanks for sharing. I admit that I sometimes struggle with how to refer to autism or autistic people in a way that is universally inoffensive while also being sufficiently descriptive. I am not personally neurodivergent, so I cannot speak to how I would feel if someone called me this or that. I can speak as a parent and say that raising a neurodivergent child is exceptionally hard. However, that does not necessarily mean it is hardER than parenting a neurotypical child. Children face all kinds of struggles at different stages in life, and parenting them through those is hard. It can certainly feel like a hardSHIP, but it is not as if helping a child through neurodivergence is the only hardship a parent could face. There are millions of them. Marriage can be a hardship. Work can be a hardship. So, I wouldn't tell people, "Parenting my son is such a hardship!" Because like anything worthwhile in life, parenting him is part joy and part sorrow. That's just the way life is. And there's no reason for him to feel guilty about it, or for any other autistic person to feel guilty, even if they are more dependent on others than the average person. (And not all autistic people are.) This is the kind of dangerous thinking that leads people to seek physician assisted suicide: because they don't want to be a burden. Well, everyone is dependent on others, and everyone creates a burden for others at some point in their life. That's just the way it is. I don't think we should make a show of calling people out on it or complaining that we have to care for others, because that is a denial of our own dependence on God and other human beings. But it might be ok in the right circumstances, speaking privately with the right person, to vent about life's difficulties. Often, that is all people need: a chance to get dark thoughts out rather than holding them in and stewing. Sorry, I've typed a really long answer. I guess I'm saying, I agree with you, but there is some nuance there as well.

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Jenn's avatar

This is super helpful, Rachel. A couple of these I had never heard before either, but I can see why you feel the way you do about each of them.

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